Links to Other HD Sites

Other Websites about Huntington's Disease

Caring for People with Huntington's Disease - Information about caring for people with Huntington's disease, for patients families and professionals. www.kumc.edu/hospital/huntingtons

Cure HD Foundation - A charity site aiming to spread awareness, information, and news about Huntington's disease. www.curehd.org

Huntington's Disease - An information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. www.ninds.nih.gov/disorders/huntington/huntington.htm

Huntington's Disease Advocacy Center - Information, question and answers, problem-sharing, personal experiences and articles on Huntington's disease. www.hdac.org

Huntington's Disease Society of America - Research, assistance and education www.hdsa.org

International Huntington Association - Federation of national voluntary health agencies www.huntington-assoc.com

Juvenile HD - Information for families with a child with juvenile HD or one at-risk. Http://endoflifecare.tripod.com/juvenilehuntingtonsdisease

Huntington's Disease Support Information - This site is intended to help those people find information to help you and for the many thousands of families living with Huntington's Disease around the country who do not have the benefit of having a support close to them. http://endoflifecare.tripod.com/index.html

Nutrition for People with Huntington's Disease - Nutritional information, and resource links on aspects of nutritional care for people with Huntington's disease. www.lib.uchicago.edu/~rd13/hd/nutritn.html

Huntington's Disease Lighthouse - Current information on treatments, drugs, support and patient resources. http://hdlighthouse.org

Huntington's Disease Awareness - Information to help increase the awareness Of Huntington's Disease. http://www.HDAwareness.com

Research - Information from the Indiana Chapter to HD Research links. http://www.hdsaindiana.org/research.html

Huntington's Disease Video Awareness Theatre -This site is dedicated to the efforts of those people living with Huntington's Disease who have taken precious time out of their life to create awareness about the disease! http://get-me.to/hdvideos

Huntington's Disease Clinical Trials - There are many Clinical Studies underway, and a number of potential therapies may move into Clinical Trial phases in the very near future. Volunteers are needed for ongoing trials and many more will be needed for future trials. HDTrials.org has been created to enable clinical trial participation, the HDTrials.org web site will provide quick notification to Huntington families of opportunities for participation in clinical trials and studies through a confidential email list.

Tardive Dyskinesia- Tardive Dyskinesia (TD) is a result of damage to the bodily systems that process dopamine, and is typically caused by exposure to certain prescription medications - including Reglan. The symptoms of TD, which are irreversible and incurable, mimic those of Parkinson’s disease and Huntington’s disease. Tardive Dyskinesia victims suffer from involuntary, repetitive movements which often continue after the drug is no longer used. We feature the most up-to-date information on TD, its causes and all known treatment options. Additionally, they distribute free support books and informational packets to our users. Click HERE for more information on TD.